Just when I feel good about things...
An ACC/breast website touted a man who had literature on ACC/breast that he gladly emails any one who asks. So of course I ask and he sent about 150 pages worth of documents--many of them old, but interesting. Nothing too surprising in them--very typical of the literature I have read but I am still sorting thru it all and printing, slowly but surely.
But then I see that he has sent a letter with this info, which I was glad about because I don't know who he is or why he has all this stuff. I was hoping he was a physician expert on ACC but it turns out he is the husband of a woman who had ACC/breast. She died 13 months after her diagnosis.
That scares me to death. He did say that most ACC/breast is very indolent (slow growing) but that his wife had the aggressive kind of ACC. He also urged anyone to get multiple opinions about the tumor.
Glad I am going to Ansari tomorrow. I did email him back and as nicely as I could asked him for her story...not sure if he will email me back. I am praying, so so selfishly, that she had mets even when she was diagnosed, etc. I just want to be different than she was.
Heavy heart tonight. But tomorrow is another day, I suppose.